im relieved to have found this thread. My life has been on hold 2 years with these symptoms. Im housebound but generally not bed bound. My worst symptom is a 'weird head thing' the best way i can describe it is its an unpleasant 'excitory' feeling in my head/brain mostly at the back of my head, like being tickled beyond what you enjoy, its like a kind of adrenal surge in the head except it lasts about an hour and i have to lay on the floor feeling like I'm dying, and the pressure/excitement in my head will explode, i feel like it will send me insane. It passes eventually leaving me feeling limp and sick. Generally, it just feels like a pressure at the back of my skull, heavy and unpleasant. I have a feeling its estrogen surging, and i have found a supplement called DIM seems to help alleviate the time of acute suffering, but its bad. Really bad, like when its happening i feel like i want to die to make it stop. The last episode was yesterday at the end of my period, but my period tends to now go straight into ovulation, so it may be the estrogen building. i dont know what it is, but its awful.
Q
