Oh Sylvia,

I am so sorry to hear about this. I know exactly how you are feeling. I pretty much was told the exact same thing this summer...but the difference is mine was a rare cancer in my kidneys. You really need to trust your doctor and turn everything over to God. You stressing over this will not help you at all. Let God carry it for you and just take it one day at a time. Enjoy every moment of every day. When you need support turn to those who care about you (your family, your friends, your GJ family, and anyone else who can help you through). I know that the path looks hard right now, and parts of it will be, but I made it through it, you will too. If you would like to have someone to talk to who truely understands, I am always here.

~Micki~

We often think the worst but could be that is only place cancer is & they can take it out!! Better to be sure tho!! Will be thinking about you daily & checking to see how you are doing so please report in from time to time. Prayers & thoughts of you & your family that you will soon get treatment & be doing well!! Jan

I hardly know what to say, Sylvia. Other than I'm glad you have the support of Micki here, its wonderful she's offered to be there for you after what she's gone thru. I know everyone is sending their love and prayers, I hope you can 'feel' them. We'll keep you surrounded with positive thoughts! Meanwhile, here is a little something I kept taped to my mirror for months when I needed a little extra something to get me thru a very bad time....

{{gwi:77091}}

hugs from the heart,
Karen

Awwwwww, Sylvia! I hope all works out for you and I am so glad that Micki has offered to be that strong shoulder you can lean on. I can't begin to comprehend what you are going through and I'm glad there is someone here for you who fully understands. Like Karen said, we will be saying prayers and sending positive thoughts your way. Please know that you are loved and cared for by your fellow Garden Junkers!

Kathy

Glitter Graphics & Comments

sylvia
so sorry. keep your chin up
debby

The big "C" word is threatening to us all. But be assured that medicine has come a long way. Sounds like you are getting some good strong referrals to get the best help. Now let that "Peace that passes understanding" wash over you with assurrance of certain victory.

May He bless you and keep you,

Susie

Sylvia, Carol and I will pray without ceasing for you... Like Susie, we pray for God's peace that passes all understanding... We are all here for you. Please keep us posted. We love you. Kirk and Carol

Sorry to hear your news but praying that time is on your side.
Your name twin,
Sylvia

So sorry Sylvia. Your god given controlling personality will be put to good use doing research!
We're all pulling for you.
kathy

Sylvia...a repeat of everything said above...continued good thoughts and prayers coming your way.

Also want you to know that those "University" hospitals are so thorough and a God-send! I am an example of what they called a "walking miracle" because of the University of Iowa Hospital where I spent 2 mos. Also have a "rare" chronic illness and they figured out what it was and I have been back HOME now for 2-l/2 yrs. almost! I had never been hospitalized except for having kids.

So, I want to tell you that it is OK to be scared, and it is OK to get angry (sometimes) & the best advice I can share is what Smicker said, "turn to those who care about you (your family, your friends, your GJ family, and anyone else who can help you through. And the great gift of all, God will be with you! Your dr. had good advice! Jeanne S.

Dear Sylvia:
I'm not sure what to say....
Mostly.... Lots of Love & Prayers 2 u !!!!!!!!
and
I ditto what
everyone of these GJ friends says :
Kirk & Carol, Karen, Micki, Kathy & other Kathy,
Debby, Jan, Jeanne, Sylvia & Susie

And Me....
Susie

We All Love You and Care for you...
And
GOD was good to give you the Good Look'n Dr
and
the fact that he said... "TRUST GOD" !!!!!!!!!!!
That is Wonderful !!!!!!!!!!!

Keep us informed !!!!!!!!!
Remember....
Drink Lots of water... and rest and
Take Good Care of Yourself !
God Bless !
SusieSunshine

So sorry Sylvia, but like everyone else has said... turn it all over to God and we will all keep you in our thoughts and prayers. We all love you.

Donna in Florida

Sylvia, There are so many prayers and loving thoughts going out for you! Some very wise people have posted before me, and they all have such good advice. Some have overcome more than I can imagine ... I just know you will overcome this too!

That God given "controlling personality" ... use it to get through the treatment you must deal with, it will be a valuable strength to you! That's why you have it :-)

Love & prayers ~tenderee

Sylvia,

There's not much I can say that hasn't already been said by the good people on this forum, who are reaching out to you with love and prayers.

It appears you are getting the best of care, and that you have good doctors who will be evaluating your case and planning treatment. Keep the faith and trust in God. He will get you through this!

There is much power in prayer, and there certainly will be a bunch of those going out from the wonderful members of this forum!!

Take care and know we are here for you anytime!

Love & prayers,
Sandy

Sylvia,

I am a 20 year leukemia survivor and I was told it was not good at UCLA. Three to six months at best. Freaked me to hell and back! As you can see I am still here driving everyone crazy.

If you have the options, check out Cancer Centers of America:

http://www.cancercenter.com/

Also, the MD Anderson center in Houston is wonderful - though Houston is not.

http://www.mdanderson.org

The reason I am still here is that I had Stem-Cell therapy in the UK in 1988/89. Still not legal here, but it worked.

Other stuff I would suggest, is get a GOOD therapist to talk to. Do it now and do if often.

And, as strange as it seems, I turned to a very high protein diet immediately - contrary to what was suggested. I eat a LOT of RED meat, fish, cheese, chicken, peanut butter and finish Every evening, 7 days a week, off with an 8 or 10 oz. Hershey chocolate bar.

I really hope that everything turns out ok for you!

Precious Sylvia, my heart weeps for you. I am so, so sorry this had come upon you. You have a wealth of prayers and love for you here from us and there is a reason why you and Mickey have met each other. What a sweetheart she is to be there to help you through all of this. And you will get through, there, it is said and we claim it in the name of Jesus! We can be a personal source of strength and positive encouragement for you. Remember God made these mountains for us to learn how to climb. Get your hands on every bit of info you can find for vitamins, food and different things you can do to help you. Stand your ground girl, God is with you, don't be moved, hold onto your faith.
God Bless you, Sylvia, we love you!
blessings-Sherri

Sylvia,
a song for you....

http://www.youtube.com/watch?v=diUhGip85U8

blessings-sherri

My thoughts are with you, and everything said above!
Kudzu

Sylvia~

So sorry that you have to face this. Cancer is a scary thing, but there are so many wonderful treatments now. I, along with all the others, will be keeping you close in prayer and thought.

Sweet Sylvia,
God had a reason to give you a controlling personality. Use your God given talents for positive results. Prayers for you, sweety.
Vickie

My heart goes out to you, Sylvia .I wish I could reach through the screen & give you a hug . We'll always be here for you if you need us .

((((((((( Sylvia ))))))))))

There isn't anything else to say that hasn't already been said. Remember that we will all keep you in our hearts and thoughts. You aren't 'totally' alone. We will always be with you. Don't forget that cancer CAN be beatten. There are many out there that are happy and healthy and I am sure you will be one of them. My grandma was a 50 year cancer surviver.

Cindy

Thank You All
for all your prayers and encouragement!
This "CoCo" as I am calling it is Esthesioneuroblastoma
Yucky word as my GS would say!
Extremely rare 200 cases diagnosed worldwide
My son has found out that 100 of those cases were treated at Mayo. He is researching who the surgeon is?
It will require surgery, radiation and chemo!

Micki, I tried emailing you but email did not go thru, would you mind emailing me to make sure I have your correct email address. Mine is sylvia.avila@verizon.net

Karen, I love the "I will face my fear...I have added it to my email signature.

Kathy, how did you know I love "Bling" Glittery Hug is so cute!

Jeannespines, Thanks for reassurance about University Hospital, I am positively thinking I will be a Walking Miracle like you!

Brian, Thank You for websites and the benefit of your experience. My dear son is doing major research and I will give him this info, so far he has found out about Mayo!
PS As far as Big Brother is concerned go for it. I came out of retirement to help Middle School Children and it was a total blessings. These dear children still keep in contact with me. And so many children need someone to tell them they are "special"

Sherri, Music heals my soul

Jan, Debby, Susie, Kirk, Carol, Sylvia, Kathy, SusieSunshine, Donna, Tenderee, Sandy, Kudzy, Marlene, Vickie, Sylvia, Cindy
Thank You Thank You Thank You Isn't it wonderful to believe in the Lord and know he is there because he sent you to me with your loving thoughts and prayers.

God Bless You All

Sylvia

Mayo is a very good place. I am originally from So. Dak. They handle all the difficult cases for S.Dak. At least that is where everyone I knew ended up! You want the most experienced people treating you & if the expense is too great to go there sometimes you can get your dr. out here to contact them & they will work with your dr. Most good drs welcome working with other experts. I've had couple of relatives have their cases handled like this, so certainly worth a try. Love, Hugs & prayers for you ! Jan

I am so amazed at the cancer treatment available today. It has to be a testament to God that so many people have contracted it and survived. Just look at the folks on this forum!

The bright side of having such a rare cancer is that specialists will be tripping all over themselves from all over the world to treat you while they study it. You will undoubtedly get the most amazing care no matter where you have it.

Good luck, it sounds like your son is doing a great job of researching treatment for it. And please keep us updated on your condition.

I think it has all been said so I second it all. I'll be praying for you too.

(((((HUGS!)))))

~~Mimi

Sylvia,

I want to tell you that my Dad is fighting lung cancer right now up in Alabama. He has not thrown up once!!!!!! This is a man who can not drink EGG NOG because he swears he will throw up.

The radiation was totally painless, chemo drips were his reading time. He is indeed tired but some days he feels like a million bucks!!!!(today he felt wonderful).

God hires the nurses that work in the offices he goes to. He has been so blessed by their special souls. Or could they be Angels Unaware???

He commented that the other patients there with him are more alive than EVER. It has changed their perspectives to be in "the fight". The actual process gives the patients almost a "Runner's High". I will tell you my dad is a different and a better man than ever.

Jesus said there would be tribulations in this world (Yes Lawd we know). He also promised that He has overcome the world. The way my Dad sees it, "WE WIN" period.

Susie

Susierose ~ your Dad will be in our thoughts and prayers too!

You're right about chemotherapy being much improved over the old days. And other treatment methods have improved as well. This will help make the patients more comfortable. Anything that helps with that is welcome!

Sylvia, I think of you so many times every day, and Susie, I sure hope your Dad does well with his treatment. ~tenderlee

Susierose, I too will keep your dear dad in my prayers. Hopefully my response to chemo will be nausea sicky free. No IT WILL BE SICKY FREE!
Your dad sounds amazing, his postive attitude must be infectious! You must wonder why I am using all these BABY words, well I have always been the strong one so I think I will cut me a little slack and baby myself too!!LOL
Give him a HUG from me tell him it is from a kindred spirit!

Sylvia

Hey Sylvia,

I sent you an email...if you don't get it let me know...but you should because it hasn't come back yet. God is with you holding your hand...and he will carry you when you need him to. My prayers are with you now...
And Susie my prayers are with your dad as well.

Micki

(((((((((((((((SYLVIA ))))))))))))))))))))))))))))))))))))))

((((((((((( Susie's DAD )))))))))))))))))))))))))))))))))))

(((((((((( People who need Prayer & Love))))))))))))))))))

Keep talk'n & Keep Asking for Prayer & Support !!!!!

Keep Lett'n Us Love YOU and Hold You Up in Prayer!!!!

Friendship is a Mighty Tool that God Uses to Heal !!!

Love & Prayers !
God Bless !
SusieSunshine

**** Reach Out and Touch Each Other !!!!!!!!!!!

I will be praying for all cancer patients!
Since bill died of cancer, I have been thro' all of the things (with him), chemo, radiation, etc.
The chemo room where he went had lots of FROGS (Fully Rely On God). Bill too, turned everything over to God--God is the Great Healer! Miracles can happen!

Susie, your dad will be in my thoughts and prayers too! And I think sharing his story is a great comfort not just to nanagrandma but the rest of us who have know someone who is a cancer survivor and there is always that underlying fear that it will return. It sounds like treatment has come a long way! I remember when a friend had chemo years ago and to settle her stomach and gain an appetite they recommended she use marijuana. She said it was a godsend! lol! Nanagrandma, I hope your treatment is relatively problem free! You will continue to be in my thoughts and prayers.

Kathy

Prayers, hugs and love to you. Edie

Sylvia and Susie - I'm sending prayers your way asking God to help you through these difficult times and prayers for your doctors that God may show them the way to your healing. Prayer is a Powerful Thing! Colleen

Hi Everyone.
I had a long day yesterday, so today my body must have needed sleep and rest because I slept most of the day!

I spoke to Mayo Dept. of Neurology and they were absolutely awesome. They advised me to get my films, medical records, hearing tests, etc. to them, I sent them out yesterday. Dr. Link (Mayo Neurologist) will read them and then I will get appointment to see him. I told his secretary, if surgery is ncessary I want it done then I don't want to come back for it. I feel confident and strong and I know that I am bathed in prayer and in the Lord's hands!

Oh by the way, got MRI results, the "CoCo" has not spread to the brain. Thank You God for answered prayer!!!!

I went out an got me Reader Digests Book of Jokes, Poetry Book, and People Mag.

I have been trying to lose weight but maybe the side affect of chemo will get me "skinny" AGAIN, LOL

And I am definitely going to try marijuana (POT) I was the one who watched every body else get HI, than I would watch them act silly and bump into things and laugh uproariously at nothing. I think I am old enough to give it a try LOL
It looked like a lot of fun bAck then, but I was a Catholic School Girl and I didn't want to make a bad confession. Because I would have surely F I B B E D!

Now to find a Dealer!!!! :)

Sylvia, I've been thinking about you ALL week and praying for you non-stop. Here's a song for you that is close to my heart... someone shared it with me when I was going through some pretty hard times. I'll continue to pray for you. God Bless! Love ya! (And Bear Hugs!) Kirk

Here is a link that might be useful: A Song For You

Nice song Kirk! I enjoyed it! Glad Mayo is getting things set up, maybe they have apts for patient's families coming there like they do out here, much cheaper kind of like McDonald house. Be careful on that "dope" don't want to fall & break a hip!!! One problem at a time!! Hugs & prayers going up for you & your family!! Jan

Beautiful song! Thanks for sending Kirk and for praying for me I can feel all those prayers.

Jan, they did mention something like that when I told them that my DH would be coming with me. About the POT, I have it all planned out I will be in wheelchair doing wheelies!!! :)