I was going to start one this morning but haven't had time. I'll try to get one once we get home. He had chemo #2 yesterday which was a week after he was supposed to have it - due to his feeding tube having a bad infection as well as a bad fungal infection in his mouth.

His feeding tube feels pretty good today; think the IV antibiotics they gave him the last 24 hours may have knocked out the rest of the infection :)

I'm leaving to go get him; we have to go to radiation 1st.

Here is a link that might be useful: My hubby - need prayers.. - rose forum

Her last post on Rose forum Nov 6 - so you don't have to go to link and scroll down (hope you don't mind)

"It's been a rough few weeks. After the surgery & healing he was feeling better and probably could have gone to work for a week but couldn't due to the disability paperwork.

It was a lot of stressful waiting to see if he was going to do a clinical trial; a drug I wished he'd get but the computer ended up putting him in the group that didn't get the drug :( The drug has been used on other cancers with good results but it wasn't meant to be & I'm sure there was a reason. He originally did not want to do the trial but changed his mind at the last minute. I know that things happen for a reason & feel that his dad who passed after my dad probably had something to do with it.

We found out Friday about the trial; lady emailed me and told me they would set his chemo & radiation Monday when he went. I let him go alone Monday because me being there with him is making him feel like he's "sick". When he went Monday he found out he'd get admitted on Wednesday. Tuesday came, the gal I email told me that they were having insurance issues and we might not have a time until the next morning. At 8am she called and said to be there by 10:30.

He was admitted, given a room then told he'd also have radiation that day (which we didn't know). I ended up leaving right before they took him for radiation. Mass transit was on strike & if I didn't leave I'd be stuck in traffic all night since most people had to drive into the city. After radiation he had lots of pre-chemo meds through the IV; chemo at 8pm which took 2 hours. Of course he didn't sleep much that night due to all the liquids they gave him.

We timed his release so that I was pulling up when he walked out. We did this because he was feeling ok & I'm trying to give him a little space. The parking charge is also outrageous; why pay $10 to run in and get him?

So, he had to go back in today for radiation and a taste bud study; he was up to driving there so he drove in; I then went back home and picked him up a few hours later when he was done. He's exhausted & has been sleeping since we got home.

Thankfully we don't have to go back to Philly until Monday which his son will take him; my daughter has a Dr appointment I have to be there for. Tuesday will be a long day. In addition to radiation he has the oncologist.

The next chemo will be November 25, another over night stay with the last being December 16th. Thankfully he's only having 3 chemo treatments but there are large doses.

Please say a prayer for my neighbors mother in law. I found out a few weeks ago that she was diagnosed with Lung Cancer; and found out yesterday that they want to remove her lung. I feel helpless. She's not in NJ, I can't give her advice on where she should go."

Update us when you can!

Roselvr,

Not sure if you received my email a while back. SPOHNC is a support group for families dealing with oral, head, and neck cancers. For some reason their website is not working. Check with social services at the hospital for their phone number.

Also, since your are at the hospital frequently check to see if there is discount parking available.

You and your husband are my thoughts and prayers.