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joansews4u

My own update

20 years ago

I want to thank you all for your thoughts & prayers. Our world has been such a whirlwind the past 2-3 weeks that I still feel like I am spinning.

I got the report on the sentinel node biopsy Tues.....CLEAR. That means NO radiation or chemo! One more on the hormone receptor test is still out. It will show if I am a candidate for one of the preventative meds to ward away the demons in the other breast.

I am doing well. My "bossy" nurse has returned to her daily counseling job that pays much better than this one. I still have her nights. Don't know how I would have managed w/o her. I still have drains that tangle & get in the way. I have been reading stuff on the next steps & when I read I doze off. That hospital was no place to sleep.

My sister was 7 doors down, going in the night before me. She had a knee replacement & had been in rehab 2 days when she got sick. Turns out to be pancreatic & gall bladder problems. Susan was able to tend both us & her kids stay on their jobs while I was there. They had to clear up infection before surgery. I am waiting to see if they finally did it today. They kept saying "Maybe tomorrow. Maybe tomorrow".

We are going to work out the kinks in this thing that was donated for the drain pouches. It is great as is & I can't imagine the hassle had I not had it. BUT the ties get in the commmode & it is absolutely flat making it hard to get something the size of an individual juice box in & out of it. I want the two sacks on one band & secure it with D-rings on one side of a sack.(NO ties tails to get in the commode). Then I am going to work on a sack with more room on the frontside than the backside.

I know local folks are making them & donating through support groups & the American Cancer Society. My surgeon was just in awe of them. I think that his reason for not seeing them is they are mailed to the home while the patient is in the hospital or the gift is delivered w/o an explanation for their use &/or no one is curious enough to go through the stash of things that are left for them. They keep the drain pouches out of the way to shower too thus requiring 2 sets per patient for a dry one handy. The ACS needs them in the worst way. We will post OUR directions ASAP & hope some of you will sew some for the women in your area. In the mean time, watch for good buys on ribbon about 3/4 to 1" wide for the ties & if anyone has 50% off notions for Veteran's Day or the day after Thanksgiving, pick up D-rings. Ribbon is not an absolute necessity.....a fabric band can be made. The sacks can be made from scraps. Simple sewing for a project for kids too.

I hope some folks like Taggies hasn't got a patent on this idea & comes screaming out of the woodwork again. I will date & sign everyone I make in permanent ink & nobody better scream at me with a patent date after the date I put on mine. Am I getting well or what?

Comments (14)

  • 20 years ago

    Joan, I am so happpy to hear that the tests so far have come back favorable. I would be happy to donate some time to make some bags and send them wherever you think I should. Let me know. Colleen

  • 20 years ago

    I am so happy for you that you don't have to do chemo or radiation!

    I would be happy to make the bags also. I've been looking at different sewing for charity projects, and none have really popped out at me. Also, I was looking at the JoAnn ad, and realized there wasn't anything that I needed. So now I can go get the D rings. Is there a particular size?

  • 20 years ago

    Sounds like a good project for a sewing guild somewhere. You sound feisty...a very good sign to be sure! SO glad to hear you're able to dodge the chemo/radiation! It's always so much better to be home, too. Great to hear from you, Joan! Hang in there and keep us all posted.

  • 20 years ago

    Hi Joan,
    Glad to hear that you are doing so well and that you don't have to have chemo or radiation.You sound wonderful,but don't overdo.

    I also would like to help by making those thingy's you're speaking of.Just let us know,and show us a picture of what they are supposed to look like.

    Tell Susan we said thanks for taking such good care of you.
    Take care of yourself and stay in touch.
    (((((((((((((joan & susan)))))))))))))))))))))
    Kathi

  • 20 years ago

    Temom: The D-ring size would be to fit the ties. 3/4 -1".

    Colleenny: Check with your local American Cancer Society first & ask how to get in touch with their Reach for Recovery volunteer.

    Another thing in my gift pack was a heart shaped pillow about 6x6 to go under the arm pit. They had turbans & another style cap. Lots of agencies provide them. The ACS volunteer here expressed a need for the drain pouch bags & the heart shaped pillow.

    This bag finishes at 6" tall x 8" wide. I plan to cut my back piece 7x9 & my front piece 7x11. I will pleat the bottom edge of the front down to 9" & run 9" of elastic in the top hem. Hem the back top edge.

    As I sew the side seams, I will put a spacer of ribbon or fabric about 1 1/2" at the seams that will be the center front. Enclose the raw edges in the seams there. Fold 4" of ribbon or fabric tie piece in half with the D-rings enclosed. Sew it one the side seams of one bag.Then sew the bottom seam & that finishes it. Sew a long tie in the other side seam & then the bottom seam. Ties & spacer will go at the very top of the side seams.

    Mine are 2 single bags & they resemble an apron for a doll, only the apron part is a little tote bag. Some single bags may be used but to my understanding most breast surgeries have an arm pit drain for the node area & a drain from the breast area. This double unit makes better sense than 2 separate ones. Mine are made from unbleached muslin.

    I am thinking of doing sizes by length of ties,like 36, 46, 56. Too big could be cut off but I haven't thought of a way to add extensions except adding a buttonhole to the end of the tie & including extra lengths of the ties with a button attached to it. I hate to use excess ribbon on all of them just so they would be a one size fits all. The ACS volunteer here has an office in the hospital where she keeps her supplies. Once she sees a patient, she goes for what she needs & could determine if longer ties or extensions are needed. If I need to draw something out for better understanding I will.

    Hope many of you consider this project. These drains stay in about 2 weeks & if the tubing gets caught on anything & you walk away.......OOUCH!!!!! If you are laying on it & move your arm, same story. Our vet's wife had her surgery 9 years ago & she said bathing was hard having to hold the drain bags & bathe & said she got her's hung on the vanity drawer pull or shut the drawer on her tubing more than once after she stood there awhile.

  • 20 years ago

    Joan, that is such good news, no kemo, my DIL Susan has been on the medication and now off, it's 5 years since her double M at age 32, she is doing great, and you will too, you have the same "Maker", and your sister needs prayers too for quick recovery,special blessings on your Susan Rene

  • 20 years ago

    "Bossy", huh? I got a good laugh out of that one. Must be the "oldest/only child syndrome" rearing it's ugly head again.

    I'll take pictures of the existing drain holders and the one that she creates, and post them here. I understood from the reach to recovery worker that they had a template for the heart shaped pillow on the American Cancer Society Website.
    Thanks again for the support from all of you.
    Susan

  • 20 years ago

    Joan, I'm so glad to hear your good news! I hope you are back to normal very quickly!

    Donna

  • 20 years ago

    Your recovery news is fantastic! I also am interested in making some of the drain bags. I'm always looking for a good use for my scraps & ribbon bin. I'll have to contact my local ACS.

    Good luck on your continued recovery.

  • 20 years ago

    Sooooo good to hear from you!!!!!
    Count me in on the drain/pouch holders....I have LOTS of scraps, and my SGS works for an oncologist...they will know who needs them!!!!!
    Blessings to you and your nurse!
    Jaybird

  • 19 years ago

    I don't know which end to start at!

    I haven't been around this board much lately, so I was scrolling down looking for names I recognised, see how some 'old friends' were doing. I was so shocked to learn of your recent illness Joan. And so relieved to hear that things are now going so well.

    I've been struggling a bit with my own stuff for the last few months, nothing serious, just stuff. But it all pales by comparison.

    My very best wishes for a continued good recovery to you Joan. And to your family and carers - important people! Susan, you sound like you have coped with your usual good humour.

    Love,
    AJ

  • 19 years ago

    So tell us Joan,how are you doing???? Hope you're getting better with each passing day.Susan i hope you're doing well also.Let us hear from you gals about how you're feeling these days.
    Take care
    Kathi

  • 19 years ago

    Kathi and AJ,
    She's doing pretty good. Wednesday she went to our annual church feast. She played around with her "fake Boobie" until she had it looking just like the other one. Many people commented on how good she looks. I think that she still gets tired easy. She drove for the first time yesterday. Lowe's had a ceiling fan on sale that she wanted. Monday the 13th she "took over" on an embroidery project I had started, I am on call this week and I had to take a crisis call. I think that was her first "sewing" since the surgery.
    Y'all take care,
    Susan

  • 19 years ago

    Thanks Susan,for the update.
    Glad she's getting back to her old self,and hope she continues down that path.Give her my best wishes.
    Kathi

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